Down syndrome Information Act Update

During the 2016 legislative session, a bill was passed that requires pediatricians and other healthcare providers to share information with parents who have received a pre- or postnatal diagnosis of Down syndrome.

This past March, the Arc of Whatcom County (with support from DOH/WSLI) led a webinar for individuals or organizations who support individuals with Down syndrome, self-advocates, medical professionals, and anyone interested in engaging your local medical communities in order to support the Down syndrome Information Act.

Watch the webinar here.

Free Booklet

Lettercase, housed in the National Center for Prenatal and Postnatal Resources at the University of Kentucky, prepared a booklet entitled “Understanding a Down Syndrome Diagnosis.” This booklet, printed in English and Spanish, is endorsed by professional and advocacy organizations alike.

When you have a family whose child is newly diagnosed with Down syndrome, you can request a copy for free through Lettercase or by emailing the Washington State Department of Health. This booklet is also available for free online including additional languages such as Korean, Chinese, Japanese, Vietnamese, Somali, Russian, and Spanish.

A list of local organizations in Washington, northern Oregon, and western Idaho that support people with Down syndrome and their families is provided as an attachment, and can be found here.

Please contact Genetics@doh.wa.gov if you have any additional questions about this new regulation.



2017

  • About the Council

    The Washington State Developmental Disabilities Council is a Federal-State partnership working to plan for and with people with developmental disabilities and their families.

  • Partnerships & Initiatives

  • What We're About

    Developmental Disabilities Council is a Federal-State partnership working to plan for and with people with developmental disabilities and their families.

    Join The Council

    If you are passionate about public policy, and dedicated to improving the lives of persons with I/DD in Washington State, we welcome your application.

    Access For Members

    Council meeting materials, agendas, and forms. You’ll find everything you need to prepare for the next meeting (or review the previous year) right here.